Yesterdays apt went well. They don’t know what is wrong with Henry. He doesn’t quite fit into any of the issues he might have. He has begun to adapt to his SEVEN days of not walking and has begun this little hobble thing, but he gets frustrated/tired/sore after about 1/2 hour of movin around. They want us to wait till Monday till we do further testing. I have an apt for Monday at 11:30am. …But today I am sad, I am frustrated, my body feels off…I have so much sadness for people who have to deal with very very sick babies! I don’t know how they do this! It is so hard and I know my baby will be fine…but it must be so hard for people who don’t know! My heart aches for them.
I emailed the Dr and asked if we could change Henry’s apt to some time this week, I just don’t want to wait thru the weekend. We will see.